Category: parenting

How to manage defiance and oppositional defiant disorder

How to manage defiance and oppositional defiant disorder

Troubled children and teenagers who are pathologically defiant have a brain condition with many possible causes or diagnoses.  Whether they are overtly aggressive or “passive-aggressive,” parents have options for reducing defiance and limiting the stress they bring into the household.

anterior cingulate gyrus
In a healthy brain, the pink region doesn’t light up quite like this when a person is confronted with a limit or rule. A healthy child starts considering options and ways to work around.

If your child is defiant to a degree that affects their life functions, this is what it looks like in their brain.  The pink color of this curving central region indicates intense electrical activity.  This is the brain scan of a 13-year-old boy with severe oppositional defiant disorder (ODD).  Hyper-charged activity in this region can also be responsible for obsessive compulsive disorder (OCD), unstoppable rages, pathological gambling, chronic pain, and severe PMS.

It is called the anterior cingulate gyrus (ACG), which allows a person to shift attention to different subjects and think flexibly–something defiant kids don’t do well.  Nor do they regulate emotions, something the ACG also does.  Children with a hyper-charged ACG have “a pattern of negativistic, hostile, and defiant behavior lasting at least 6 months, during which 4 or more of the following are present:

  • Often loses temper
  • Often argues with adults.
  • Often actively defies or refuses to comply with adults’ requests or rules.
  • Often deliberately annoys people.
  • Often blames others for his or her mistakes or misbehavior.
  • Is often touchy or easily annoyed by others.
  • Is often angry and resentful.
  • Is often spiteful and vindictive.” 

–From the “Diagnostic and Statistical Manual of Mental Disorders, 4th Edition,” published by the American Psychiatric Association, 2000.

Typical traits of defiant children.

  • screaming teenage girlThey act younger than they are. Don’t expect them to mature quickly.
  • They live in the here and now, and can’t think about the past or future.  They don’t see how their actions result in a series of consequences.  They can learn sometimes, but only if it is pointed out immediately after an incident.
  • They don’t notice their effect on others.  Sometimes you can ask one of the others how they feel immediately after an incident, or you can gently report how it makes you feel.
  • Their brain is easily overloaded, and they have a hard time with changes.  And yet, you can use this overloading problem to your advantage (more below).
  • They cannot follow your reasoning, so don’t try.
  • Defiance may be a strength in their future. With mature skills, they’ll better resist negative things they’ll face in life.

Unrelenting defiance is a true disability that negatively affects a child’s life and future.  I’ve seen highly intelligent defiant or ODD diagnosed children experience academic failure or enough suspensions or expulsion to hold them back a grade.  This is a can’t-win-for-losing path that really sucks, doesn’t it?

Two different psychiatric approaches to defiant behavior and ODD

  • Treating it as a form of attention deficit disorder;
  • Treating it as form of depression and obsessive-compulsive disorder.

The attention deficit approach uses therapy in combination with medications, such as Straterra (chemical name is atomoxetine), Ritalin (methylphenidate), Risperdal (risperidone, an antipsychotic), and Depakote or divalproex (a mood stabilizer).  This is not a complete list because new compounds are being formulated to reduce side-effects.

The depression & obsessive-compulsive approach combines therapy in combination with serotonin-based antidepressants such as Prozac (fluoxetine) or Zoloft (sertaline), and Anafranil (clomipramine, for anxiety). Again, this is not a complete list.

Treatment must also include holistic or ‘lifestyle’ approaches.

These are absolutely essential.  No amount of medication or therapy will help a child whose physical body is in poor shape!  The brain is an organ too, like the heart or liver, and needs the right nutrients and oxygen delivered through the blood.

  • avocadoEat brain food that includes nutrients and minerals listed in these articles:  The best vitamins for your child’s brain, and The brain diet for troubled kids.
  • Avoid foods that cause mood extremes and limit cognitive functions (such as memory and processing speed) such as:  food fried in oils other than olive oil, refined sugars and starches (flour, white sugar), saturated and hydrogenated fats, diuretics like caffeine, and any other foods that have dyes or nutrients removed by processing (for example, apple filling in pastry instead of actual apples).
  • Get more sleep and exercise – these have an immediate and direct impact on brain health!  In even one day, a brain will under-perform if there’s been inadequate sleep or exercise.  Sleep restores brain function and memory, and exercise pumps oxygen to the brain and causes the release of positive hormones and neurotransmitters.
  • Drink water (sports drinks are OK too if they don’t have caffeine)

Defiance and ODD often include symptoms of other disorders

  • 50-65% of defiant children also have ADD or ADHD
  • 35% develop some form of depressive disorder
  • 20% have some form of mood disorder, such as bipolar disorder or anxiety
  • 15% develop some form of personality disorder
  • Many also have learning disorders

Anthony Kane, MD 

Other conditions can cause defiant and disruptive behavior

  1. Neurological disorders from brain injuries, left temporal lobe seizures (these do not cause convulsions, no one can tell these are happening), tumors, and vascular abnormalities
  2. Endocrine system problems such as a hyperactive thyroid
  3. Infections such as encephalitis and post-encephalitis syndromes
  4. Inability to regulate sugar, resulting in rapid ups and downs of sugar in the blood
  5. Systemic lupus erythematosus, Wilson’s disease
  6. Side-effects of some prescription medications:  Corticosteroids (anti-inflammatory and arthritis drugs such as Prednisone);  Beta-agonists (asthma drugs such as Advair and Symbicort)
    –From Peters and Josephson.  Psychiatric Times, 2009
  7. Autism spectrum disorders
  8. PANDAS – an acronym for a strep infection-caused disorder that can make a previously normal child violently resistant.  (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)
  9. Dehydration

If your child has these traits, it will be easier to reduce defiant or ODD behavior

  • A normal IQ
  • A first-born child
  • An affectionate temperament
  • Positive interactions with friends their age
  • Nurturing parents who can consistently set clear behavioral limits

–From the Journal of American Academic Child and Adolescent Psychiatry, 2002.  Author J.D. Burke.

Choose your battles
Let’s face it, consistently enforcing limits isn’t possible 24/7.  It’s exhausting.  Take a break; let some things go.

Parenting that works for ‘normal’ children does not work for defiant children or teenagers.

First, be kind to yourself; this is hard.  Get enough sleep, maintain your supportive relationships (spouse or partner, children, friends), schedule breaks and getaways, and guard your physical and emotional health.  Don’t expect quick results because success may take weeks or months. 

Address just one issue at a time, then strengthen yourself for running a marathon.

Find something positive to do together.  Your child needs for closeness and appreciation and joy, like everyone.  Ask your child what positive activity interests them most, or try new activities until one brings about a good chemistry between you and your child.

Praise is a powerful tool for managing disruptive behavior.  Make an effort to inject positive energy into your relationship with your child or teen.  It’s likely that this relationship has become mostly negative over time.   Caution: don’t expect thanks when you praise your child.  They are typically self-absorbed and not thinking about you.

Set limits – “Consistent limit setting and predictable responses from parents help give children a sense of stability and security.  Children and teens who feel a sense of security regarding the limits of their environment have less need to constantly test it.”
–Webster-Stratton and Hancock, Handbook for Parent Training, 1998

ignore childActively ignore – This works for best with children between the ages of 2 and 12.  It involves purposefully withdrawing your attention away from your child when they are misbehaving, such as a temper tantrum, whining or sulking, baiting or teasing, or making continuous demands or loud complaints.  Pretend you don’t care and even turn your back if possible.  Give attention only after their behavior is ending or over.

Make the behavior uncomfortable.

  • Example:  If your kid swears, test them, “C’mon, you can do better than that, be creative, I’ve heard all those things before.”  They can get frustrated when they aren’t getting the reaction they want from you, and defy you by giving up.
  • Another example:  Your teen refuses to get out of bed for school.  Don’t nag or repeat, repeat, repeat.  Remove the bed covers and set them far enough away that your child has to get out of bed to retrieve them.  (“Managing Resistance,” John W. Maag)

Give multiple instructions at once, where at least one of the instructions is what they want to do, and one is what you want them to do.  “Close the door while you’re yelling at your sister and don’t forget the light.”  Your child will be overloaded as they try to figure out which thing they’re supposed to defy.  Kids tend to get flustered by the mental effort and comply without knowing they’re doing it. (from “Managing Resistance,” Maag)

Use reverse psychology: it’s a good kind of manipulation.  Insist or pressure your child to do something they think you don’t want them to do, so they will defy you and do it… which is indeed what you wanted in the first place.  Pretend to agree or disagree with a behavior or choice so that you get the outcome you want.

A mother I know did this with her 14 year old daughter who’d threatened to cut off all her hair and self-tattoo her face.  The mother said she “went ballistic” over the idea of her beautiful hair being cut (even though she knew it would grow back, whereas a tattoo would be permanent).  The results were exactly what the mother wanted.  Her daughter totally butchered her hair, and the tattoo idea never came up again.

Offer unexpected rewards – On random occasions, reward appropriate behavior with something they like.  They are more likely to do a desired behavior if they expect something they want and aren’t sure when it will be offered.

Redirect their attention.  If you’re entering a situation where you know your child will become defiant, distract them.  Make yourself a list of actions or behaviors you can do that are distracting during times when their defiance should not be tolerated, such as when there’s a threat to safety.

Keep your power. Claim your throne as ultimate decision maker and boundary setter.

Don’t treat your home like a democracy or try to be fair and equal.  Be a benevolent dictator.  A troubled child should not have an equal say in how things are done.  To keep your authority and power in the household, tell your defiant child that you’ll listen and consider compromise, but make no promises.

Never justify your decision or provide reasons.  Reasoning does not work; it only promotes endless arguments. As your child ages into adulthood, an adult child will continue to require limits, and limits will still need enforcement. To a parent, it will feel like you’re treating your adult offspring as a child. YOU ARE and you should be, and this is the interesting part:  they won’t notice.

Allow some aggression.  When it’s appropriate and safe, ask your child to do more of what they’re already doing so that they turn around and defy you by stopping the behavior. Example: your child refuses to take a direction and throws a book on the floor in anger.

  • Parent:  “There’s only one book on the floor. Here is another one, now throw this on the floor.”  (Child throws book down.)
  • “Here’s another one. Throw this down too.”  (Child throws book down.)
  • “And here’s another, throw this down, too.”  (Child stops throwing books in defiance.)

Be a marshmallow.  Show no resistance.  Instead, listen and respond to how they feel, not what they say.  Show them you are open talk later when the stress dies down.

  • Teen:  “I hate you f- -king b- -ch!”
  • Parent:  “Sounds like you’re really angry.”
  • Teen:  “Shut up you stupid c – -t!”
  • Parent:  “Can you tell why me you’re angry so I can do something about it?”
  • Teen:  “Leave me alone f- -k face!  Stop patronizing me!”
  • Parent:  “OK, I hear you don’t want me to patronize you.  I feel this is stressful for both of us, so let’s take a break and talk about it later.”
  • Teen: F—k you!  I’m not talking to you ever.  (Well that’s not true, but they may ‘defy’ you by avoiding the behavior.) 

Call their bluff.

  • Child:  “I’m going to run away!”
  • Parent:  “OK, if you do, call me, and I’ll bring your stuff and maybe a snack.  Here’s the runaway hotline phone number if you don’t want to call directly.”  Then walk away.  If they do run and call, you’ll know where they are and can fetch them or call the police.
  • Child:  I’ll kill myself!  (This rarely true if shouted in anger and defiance. Your child may be throwing out threats to see how you react and get you to back down.)
  • Parent:  “If you really mean that, this is serious and means we need to get you to a hospital!  Let’s get ready and go because you need to get assessed.”

Warning, once you make progress regaining authority and reducing defiance, a honeymoon phase will be followed by a huge backlash… but this is a good sign! 

It’s proof your work is having an impact.  Extreme resistance to behavioral change is a common response called an “extinction burst;” see diagram below.  Pressure builds because it’s exhausting to try and control an urge to misbehave, and they eventually explode.  This as predictable so plan ahead.  The extreme “burst” is evidence the ingrained behavior is ending or going extinct.  There may be more bursts that test your resolve.  Eventually, your child likely stops defying at least one rule.  Pick the most critical behaviors that need extinguishing and keep up the effort.  Eventually, they back off again, and the pattern continues until it’s just not worth it to defy these rules anymore.

extinction burst

–From “Behavioral Interventions for Children with ADHD,” by Daniel T. Moore, Ph.D., © 2001, http://www.yourfamilyclinic.com/shareware/addbehavior.html .  The author requests a $2 donation through PayPal to distribute his article or receive printed copies.

Some rules for you

Don’t blame your child.  It’s easy to think they’re being bad on purpose because they’ll act like it, and show amusement when they’re bad or belittle you. Keep in mind that their behavior is no one’s fault, and your child would not choose to behave like they do if they understood what it meant.

Don’t ignore other challenges that might be responsible for their behavior.  They may face bullying at school, lack of sleep, or stress from things at home for example.

teenage mouse
Seriously, defiant teenagers think this way, and can’t see the obvious right in front of them.  I got this cartoon from a therapist who treats teenagers with criminal convictions, who are required by juvenile court to get counseling.

Always enforce your rules as immediately after the fact as possible.  Why:  If enforcement comes later or only occasionally, the child does not connect the broken rule with the punishment. They really don’t, even when you explain it quite clearly.

Don’t direct anger at your child.  If you do, apologize.

  • They can use your reaction against you, and tease or bait you to get you angry again
  • Don’t model that anger is an OK response to stress.
  • Do model that apologies are a proper response

Avoid explaining and justifying rules. Defiant children and teenagers are not able to reason once their emotions take control. They will only resist harder and pelt you with arguments. (What’s interesting is I’ve observed parents trying to reason with young children (4 or 5), too young to be reasonable in the first place, or with young adults (early 20’s) who have a long track record of being unreasonable.

Don’t interpret everything as pathological defiance or ODD.  Some rebelliousness is normal for children.  It’s especially so if parents are over-controlling.

Don’t keep trying the same things that still don’t work.  Like yelling or repeating yourself over and over (Don’t be embarrassed; we’ve all done this).

It helps to lower your expectations for your child’s behavior and progress.  What you want may be totally unrealistic, and more than you and your child can handle.

I once saw a bumper sticker that said “I feel much better now that I’ve given up hope,” and found it strangely comforting. 

Don’t jump to conclusions that demonize the child.  I often hear parents say:  “Why does he keep doing this?, or, “Why doesn’t she stop after I’ve told her not to, over and over again.”  Then they answer their own questions:  “It’s because he always wants his way,” or, “She’s doing this to get back at me.”  As they tell their story, I hear them taking things personally:  “He does this just to make me mad;” “She manipulates the situation because she wants more (something) and I won’t give it to her.”  Is this really what you want?

Two training approaches that help parents like you: 

Parent Management Training:  this is an intensive educational program that has been proven to help parents handle extremely difficult children, including those defiance and ODD.  PMT teaches parents precisely how to assert consistency, keep interactions predictable, and promote pro-social behavior in their child.  A good explanation can be found at this link: Encyclopedia of Mental Disorders.  Examples of parent management training include:  the Total Transformation and the Incredible Years.

Collaborative Problem Solving:  CPS teaches how to negotiate with a defiant or resistant child.  This may seem like giving in, but it depends on how one negotiates or comes to a compromise.  If defiance is a result of something the child needs but can’t express appropriately, a CPS approach helps the parents hone in on the  underlying need, which may be simple and easy to address.  A great place to find out more is on the Think:Kids website.

Find the energy and doggedness to be consistent, and the compassion and forgiveness to be nurturing.
This is a heroic endeavor.


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The best vitamins for your child’s brain

The best vitamins for your child’s brain

avocadoThe vitamins listed here are absolutely essential for your child’s brain, and it’s highly likely your child doesn’t have enough.  People with psychiatric disorders commonly have physical problems that are symptoms of vitamin deficiency.  Take digestive problems, for example–low levels of B vitamins cause digestive disorders, especially B12.

“One of the most common deficiencies seen in patients with mental disorders is B vitamins”*

B1 – Thiamine helps neurons to send electrical signals.  A proper level in the blood stream wards off depression. B1 is found in beans, asparagus, beef, oranges, sunflower seeds, oats, and green peas.

canteloupeB2 Riboflavin is also needed for neurons to send electrical signals.  B2 is found in sunflower seeds, fish, poultry, bananas, leafy greens, and sweet potatoes.

B6 prevents memory loss, improves memory, and helps reduce depression, and increase hemoglobin in the blood which supplies oxygen to the body and brain.  B6 is found in sunflower seeds, fish, poultry, bananas, leafy greens, sweet potato

B9 – Folic acid helps in formation of nerve tissue, or the neurons in the brain.  B9 is found in spinach, asparagus, beans, avocado, lentils, and broccoli.

kiwisB12 is needed for the myelin sheath that covers and protects neurons, and signs of deficiency are bowel and stomach problems. Probiotics for gut health are helpful, but so is sufficient B12.  It is found in seafood, eggs, cheese, leafy greens, milk, and red meat.

Vitamin CAscorbic acid regulates the production of neurotransmitters like dopamine, and protects the brain against oxidative stress, which is when there are too many “free radicals” (one kind of chemical), and too few “antioxidants” (another kind of chemical).  Vitamin C is found in citrus, tomato, kiwi, strawberry, mango, pineapple, cantaloupe, and green vegetables.

strawberry

Calcium is an actual nerve cell messenger.  It controls how signals pass between neurons.  Calcium is found in dairy (milk, hard cheese, and yogurt), sardines and salmon, beans and lentils, almonds, collard greens, tofu, and figs.

Magnesium is essential for many chemicals in the brain and body. It promotes the metabolism of B vitamins as well as signal transmission between neurons.  Magnesium calms people.  It is found in nuts, pumpkin seeds, black beans, avocado, brown rice, and leafy green vegetables.

Zinc helps regulate the electrical signals between neurons.  It is found in pumpkin seeds, beef, shrimp, nuts, chocolate, wheat germ, and oysters.

chardVitamin D is essential because it directs the production of neurotransmitters, nerve growth, and nerve connections.  Lack of Vitamin D is a common problem in people with psychiatric disorders.  The best form is from sunlight or the full sun spectrum.  Supplements have some benefit, but sun is best.

All vitamins are best obtained through food, not pills.

*“Essential Vitamins and Minerals for Brain Function”

See additional brain foods in this article, The Brain Diet for Troubled Kids.  Did you know that ~75% of individuals who are hospitalized for mental illness have very low Vitamin D?


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What hallucinations are like, from those who know

What hallucinations are like, from those who know

If you care for a child experiencing hallucinations but don’t know what it’s like, these first-hand accounts may help you better understand and support your child.


This writer is taking medications, which help, but do not fully eliminate the hallucinations.

hallucinations 1“The reason my thoughts inaccurately capture existence is because my understanding of existence is different insofar that I have to daily navigate through illusory experiences.

How hallucinations look/sound

“They look like I am looking into another dimension, their bodies fade into the background, but they sound real.  I can tell that it is from another dimension but cannot distinguish it from other normal people’s realities because my reality is all I know.

“In general I find my experience with hallucinations unfavourable because they make other people in this reality quite distant.  Learning complicated tasks is a hundred-fold more complicated for me to manage than regular people.  I literally am disadvantaged by the hallucinations in the academic sphere, but seem to thrive with the hallucinations in other ways such as long distance walking and jogging.  People should NOT interact with me when I am hallucinating because when I am hallucinating, it means I am being overpowered by another dimension and can’t understand what is going on anyway.

hallucinations 2“If family members and friends are concerned about my wellbeing they should encourage me in a positive way to do different projects on my own like reading books about subjects that interest me or go on long excursions like long distance walking and jogging.  Heavy exercise seems to alleviate paranoia and negative thought patterns like being suicidal or angry with others.”

–By Anonymous 1, who lives with schizoaffective disorder


This writer responded to questions I asked.

1. How would you describe visual/auditory hallucinations to someone who has never experienced these? What do you see/hear?

I often see people’s faces and gestures twist up and look and act angry. I hear my name a lot. I see people hiding and running to avoid me catching them and [people] watching me.

2. How do they look or sound? 

Angry, abnormal colored skin, and strange upsetting body language.

3. Can you tell when you are hallucinating while it is occurring?

Sometimes…I don’t always notice right away but there have been times when I knew it wasn’t real.

4. Do you like or dislike hallucinating?

I do, because I feel like God is reaching out to me to protect people from evil.

5. How should someone interact with you if you’re hallucinating?

Calmly, if the situation has highly intense feelings and reactions I could go into a panic attack lasting 1-3 days.

surreal leaves6. What should loved ones do or not do if you’re hallucinating but they are concerned about your welfare?

 

DON’T :

-> Never raise your voice or let yourself become agitated

-> Try to take control of the situation

-> Take anything personally

DO:

-> Hand me things I can hold in my hand for centering (leaves, rocks)

-> Remind me of the people who care about me

-> Be honest with me if I ask how realistic it was

–By Anonymous 2, who lives with schizoaffective disorder


This is a first-hand account drawn from the SARDAA newsletter (Schizophrenia and Related Disorders Alliance of America).

Somewhere around the age of 17 or 18, I noticed that I was not feeling quite right mentally.  Things were confusing, not making any sense, and I started losing my sense of connectedness.  I started drinking to cope and became an alcoholic when I entered college.

hallucination leaf dressAnyway, I got sober by entering treatment and Alcoholics Anonymous about a year later.  I was exhilarated, although things still didn’t seem to be quite right.  I felt lost.  About 14 months into my new life, I decided to find some meaning to my existence.  While on a trip with an acquaintance I noticed things were really quite different.  The leaves in the wind seemed to be talking to me.  Cloud formations had special meanings.  Television and radio shows were talking about my life.  And I thought I could read peoples’ minds and communicate with them without speaking.  I thought I had found what great spiritual leaders termed “being spiritual.”  I truly thought I had been blessed by God and that I had a direct pipeline to Him.  I felt happy and scared at the same time.  I was in a different world.

About one week later I decided to travel out to the West Coast to really find myself, given this new-found power.  While traveling, it seemed like God’s voice entered into my thoughts and told me to do something if I wanted real peace and power in my life.  That being, to run my car off the road and leave the rest to Him.  I did this only to find no peace, but a totaled car and a trip to the state mental hospital.

Since that time, I’ve been dealing with a disease called schizophrenia.  It has been an uphill struggle.  At the time of this writing, I believe I’ve found a way to pull myself out of psychosis and feel connected like before the alcoholism and schizophrenia.  Today I feel peace, own a thriving business and have a wonderful relationship with my wife.  We’re in the process of planning a family.  This has been accomplished by the philosophy of Schizophrenia Alliance, Alcoholics Anonymous, and a few special people in my life.


Readers, what does your child experience?

Do any readers have a child (of any age) who can describe what they’re experiencing when their mental health is poor?  Please share in the comments section, or if you wish to stay completely anonymous, please contact me and I will add your child’s story without any identifying information.

Back to School: Tips for the Transition

Back to School: Tips for the Transition

Starting school after a summer vacation triggers behavioral problems in many troubled children and teens.  A rocky start can result in problem behavior for a couple of months.  Your child does poor academically during those months, and their behavior primes teachers to treat them differently.  This guest article by Eileen Devine, LCSW, breaks down the issues and offers solutions for parents.


Back to School: Tips for the Transition
Eileen Devine, LCSW

parent talks with teacherIt’s that time of year again—back-to-school sales at all the stores, school emails and supply lists, fresh questions about new teachers and new classrooms. The summer break is winding down, which for some brings relief at the idea of returning to more structured days (with some respite for parents and other caregivers).  For others,transition into school brings the dread and stress of educating a new teacher on our child’s unique way of being in the world, bracing for what seems to be inevitable challenges inherent in our child’s experience of school.

Wherever you fall on that spectrum between relief and dread, there are things you can do as a parent to begin building a new foundation of collaboration with your child’s teacher. Set up a goal for everyone that leads to a successful school year.

To Disclose or Not to Disclose

Many children with brain differences (trauma-induced, biologically based.) might appear to be “neurotypical” or normal, causing their brain-based disability and related challenges to go unnoticed.

Teachers often don’t recognize the symptoms of your child’s disability and interpret them as disrespect, defiance, lack of motivation or laziness.

art classParents with whom I routinely work will struggle with when to disclose that their child has a brain-based disability that makes seemingly simple tasks incredibly difficult.  Parents are worried about the impact this disclosure might have on their child, that the stigma accompanying various diagnoses will cause negative ramifications.  (See “Teachers and Stigma – Judging and Blaming Families“)  The stigma is real, and yet with this reality in mind, my challenge to a parent is always this:

What will the impact on your child be if you choose not to disclose?

How will you advocate for them?

If you don’t disclose, how will your child access the accommodations they so rightfully deserve, based on their brain-based disability?

If your child is not fully understood by those who interact with them each day, the ability for your child to having meaningful and positive relationships with school staff is greatly diminished. I always advise pro-active planning (early disclosure) vs. waiting for a problem to occur, which can force the disclosure under less-than-ideal circumstances.

Getting Clear on Brain Tasks

When was the last time you gave serious consideration to exactly which cognitive skills or brain tasks are especially difficult for your child? We often can pinpoint the situation or recall the event where it occurred, but what brain task was involved that sent your child into a meltdown or a fit of rage?

Does your child get “stuck?”  Does your child’s thinking limit his or her ability transition without substantial support? Do they get trapped in verbal or behavioral loops? Are they unable to initiate an appropriate activity independently, even one that you know they love?

Does your child only see black and white? Are they cognitively inflexible, and respond to everything as, now or never, right or wrong?

Do they have difficulty processing sensory input? If so, what types of sensory input are especially challenging (noise, bright lights, crowded spaces, smells)?

Does your child struggle with social and emotional skills? Do they act younger than they are, and are they still learning what it means to think of others, empathize, share, and compromise?

Is their verbal communicating “off?” What do you know about the limits their brain has turning thoughts into speech?  How would you describe their memory and recall challenges?

Teachers and other school staff need specific answers so they can appropriately treat your child.

As parents who daily students fightingexperience challenging situations with our child, we usually have no difficulty articulating what event or situation “set our child off” or caused them distress. But if we can take a step back and link it with brain function, we gain an essential piece of the puzzle in terms of how to understand our child in all environments and situations.

Taking the step back, making the list of brain tasks and then translating them for others—teachers, para-educators, administrators, bus drivers— is essential for these professionals and their ability to be pro-active in their approach with your child.

I clearly remember my own first steps up the steep learning curve of trying to understand an individual with brain differences from a neurobehavioral perspective. It was challenging. I needed reminders and re-teaching. I needed to be gentle with myself when I failed to parent differently, and needed support in doing it better the next time around.

Teachers are on their own steep learning curve with this approach. It’s often not taught in education classes or offered in professional development sessions, leaving educators unprepared or ill-equipped to see children from this lens. There are ways we can help bring the information together for teachers in a concise, but comprehensive way, to help them understand what it means for our child to struggle with those identified brain tasks.

Write a succinct summary of what brain tasks your child has the most trouble with and translate what this looks like in the classroom. Then explain what works to help.

For example, for a 9-year-old child who is experiencing “dysmaturity” (a gap between the developmental age and the chronological age) might be emotionally closer to age 4.  One might observe:

boy with ADD

Johnny’s social behavior is frequently younger than his chronological age (as much as 4-5 years younger). Because of this social and emotional developmental gap, he can sometimes be seen as irresponsible or ‘acting like a baby;’ this is what it looks like when he is much younger developmentally. Remembering that he’ll benefit (and be safest) when understood as being a younger age than he appears, will help prevent development of frustration, personalization and anxiety for Johnny.

For LaQuisha, the 11-year-old in fifth grade:

LaQuisha is a very good listener, but she listens slowly (think: ten-second-child in a one-second world). She will often say “I don’t know,” or “What?” because she cannot maintain or track the typical flow of classroom conversation. Slowing down and giving her space between sentences works for her. Giving her prompting questions or other visual cues before the instruction or classroom discussion begins will allow her to participate more fully in what is being discussed.

For Miranda, who is 13 and in middle school:

Miranda struggles with memory and recall, which makes changing classrooms throughout the day— each with its own teacher and differing set of rules and expectations— overwhelming for her to manage. She will benefit from visual cues and reminders from each teacher about those rules or expectations, which she can keep at the front of each section in her binder for that particular class.

For Omar, who is a 16-year-old in high school:

Omar has significant challenges related to executive functioning as a result of his brain-based disability. One of the ways you will see this in the classroom is when he is unable to initiate a task on his own (freezes up or gets stuck) and he may need additional prompting and support to get into the assignment at hand. He also experiences difficulty forming links, such as hearing instructions and then transitioning into doing the expected task (hearing into doing), seeing instructions for a writing assignment on the board and then translating that into writing on a paper (seeing into writing), formulating his thoughts and then verbalizing them (thinking into talking). He will experience success in your classroom if it is understood he needs more time and support in this area.

Always describe your child’s strengths too, not just their limitations.  Suggest how a teacher can help your child be successful by building on things they are naturally good at and enjoy.

From the Flipside – Tips from a Teacher

frustrated teacherMany of these ideas are formulated from the perspective of a parent preparing for a child to return to school, but what about the teacher’s perspective? What suggestions would a thoughtful, experienced special educator have for parents and children about to shift into back-to-school mode?

Kelly Rulon is a teacher I’ve come to know through her work with our daughter. She’s been teaching special education for seven years, working across multiple schools and districts. She’s a strong believer in research-based systems and instruction. In her experience, with those in place, every child can be educated in their neighborhood school, without restrictive placements.

Here’s what she had to say, from a teacher’s perspective:

I know that transitioning back to school can be a time of great anxiety, both for parents and kids. A little preparation can go a long way. Here are a few things that can help your student get emotionally ready to return to the routine of school:

  1. Set aside time for an intentional conversation about the return to school. Ask your child what they are excited about for the year, as well as what might be causing feelings of nervousness. It’s a wonderful opportunity for you to connect with them. As a teacher, I love hearing about these things too! It really gives everyone the chance to begin the year with a strengths-based approach, as well as an idea of potential struggles. Knowing about these feelings early on helps to get folks on the same page, and to get some proactive strategies in place.
  2. The looser, less-structured routines and schedules of summer can be fun, but moving abruptly from that to school day schedules can be hard. Help your child gradually get back into the school routine ahead of the first day of school, be it bedtime or wake-up time or meal time. This will help with that exhausting transition back to school. (I know I’m asleep before my head hits the pillow those first few weeks back!)
  3. I always invite my students to come for a short visit to the school during the week of in-service, before school begins. It’s a busy time for teachers as we’re prepping away for Day 1, but a short, informal visit helps me establish positive, low-stakes contact with challenging students and families. This may not be the case for all teachers— and I have many colleagues who have wonderful family relationships without this meeting— but it’s worth an ask if you think your child could benefit from a preview.


A book I like is by Diane Malbin
, “Trying Differently Rather Than Harder.” It is an easy-to-read resource on the neurobehavioral approach. Although specific to FASD (Fetal Alcohol Spectrum Disorder), the information applies to other neurobehavioral challenges. Buying your teacher a copy of the book and highlighting sections that are particularly reflective of your child is a wonderful way to expand understanding of your child.


classroomAs Kelly suggests above, before school begins, but when teachers have returned to prepare their classrooms, contact the school and request a 30-minute introductory meeting with the teacher(s). Use this as an opportunity to set the stage for collaboration and provide the teacher(s) with the concise-but-comprehensive write-up you’ve thoughtfully prepared. This is not the meeting to go into your child’s extensive history or to detail their previous challenges in school. Keep it short and positive, making it clear that you’re there to be a source of support in how to work with your child. If you know your child has a “honeymoon” stage at the beginning of the year, be upfront about that, so the teacher is not blindsided by it. If you know your child typically has a rough transition back, but then settles into the routine after a certain amount of time, let the teacher(s) know this, too, and suggest ways you can work together to support your child through the anticipated rough patch.

Bringing it all Together

Transitions are hard, and from my experience working with parents who have children with brain-based differences, the back-to-school transition is often one of the hardest. My final suggestion is for you, as the parent, to make your own plan for self-care.  Focus the plan on what you will do to take care of yourself as you gear up to support your child through this potentially intense period. Rally the troops you have around you to help buffer some of the stress. Be clear with those closest to you about what you need during this period to make it through without burning out.

If you have a thoughtful, well-considered plan in place for you and your child, if you’re positive, clear, supportive and realistic with your child’s teacher(s), and if you’re able to place your child and their needs at the center of the conversation, the transition back to school doesn’t have to be simply a rewind of previously challenging transitions.


Eileen Devine, LCSW, works in Portland, OR as a therapist supporting parents of children with special needs. She is also a consultant for families impacted by FASD (Fetal Alcohol Spectrum Disorders) and other neurobehavioral conditions through her private practice, FASD Northwest, working with families nationally and internationally. She lives with her husband and two amazing kids, one of whom happens to live with FAS (Fetal Alcohol Syndrome). For more information, visit FASD Northwest.

 

The Silent Suffering of Parent Abuse When Children Abuse Parents

The Silent Suffering of Parent Abuse When Children Abuse Parents

Parent abuse is real and serious.

This [edited] article is by Alicia Bradley, LCPC, who lives in the United Kingdom.  It is excellent and covers a serious and hidden subject that’s rarely addressed.  “How many people have heard of parent abuse? especially at the hands of teenage children with serious social and violence issues? Google it. You won’t find much, except on a few support sites.  Parent abuse is a form of domestic violence that results in physical harm, damage to property, job loss, PTSD, and family breakdown.”


What Is Parent Abuse?

We have all heard of child abuse and how children are damaged by this terrible behavior, and you only have to Google “child abuse” to find page after page of information, support groups, and advice on this subject, but, how many people have heard of parent abuse? especially at the hands of teenage children with serious social interaction and violence issues? Google it. You won’t find much, except on a few support sites.

screaming teenager

Parent abuse occurs when the child commits an act or acts against the parent through manipulation, control, and intimidation in order to exert control and have power over the parent. Parent abuse can take different forms, from physical, emotional, verbal, to financial abuse.  According to Barbara Cottrell in the book When Teens Abuse Their Parents, parent abuse can be defined as “any harmful act of a teenage child intended to gain power and control over a parent.” (It should be noted that children of any age (pre-teen or adult) can commit parent abuse, not just teenagers.)

For parents and families who share their home with abusive young people, there is virtually no support or protection. In both the UK and the US, the law is on the side of the child, not the parent.  Parents seeking help will instead get inappropriate advice or blame.  The parent is always under suspicion so they keep it secret.  “Domestic violence feeds on silence.”

Signs of Parent Abuse by a Teenager

crying motherParent abuse is a form of domestic violence that results in physical harm, damage to property, job loss, PTSD, and family breakdown. It is usually perpetrated by a child in their teens who displays the following behaviors towards parent(s) and members of their family.  Signs include:

  • Threats of and/or physical violence including hitting, punching, kicking, pushing, slapping, biting, hair pulling with or without weapons or objects.
  • Screaming, swearing, and name calling
  • Intimidation
  • A constant refusal to do what has been asked (going to bed, coming home, asking friends to leave, cleaning up after themselves, not attending school/college/work), or contribute to the household, or participate in normal family activities.
  • Bullying by text or phone
  • Stealing money or property or misuse of parents credit cards/phones/computers
  • Deliberate damaging of property
  • Threats of or actual violence to pets or other children of the household as a way of intimidation
  • Emotional blackmail, such as threatening to accuse the parents of abusing them, or actually doing so
  • Drug/alcohol abuse in the home
  • Belittling parents in front of friends/other family members/public.
  • Willful drug abuse in front of family/friends
  • Other illegal activity

This abuse often occurs at school too, where students abuse their teachers and other students.  It occurs in other relationships too, when a teen abuses or bullies another adult or acquaintance.

beaten mother

Those suffering from parent abuse have experienced physical harm resulting in medical or mental health treatment or even  death; there’s damage to property, theft, or bullying other family members.  Quite often, the child who is abusing the parent does it willfully and for enjoyment.  The ability for empathy and compassion may be not well-developed they impacted by  mental disorders or psychological disturbances.

The law is almost always on the child’s side, but there is little to protect parents from children who abuse their parents. In the UK and US, you as a parent are legally responsible for that child.  There aren’t social services or legal protections for parents unless the child has a long history of repeated offenses of violence involving the police that has been reported and documented.  Schools often expel teenagers with behavioral issues, but for the parent… now what?  Expulsion protects the public but the parent is still very much at risk.

teen bullyParent abuse is not restricted to certain social groups; it can affect single and two-parent families equally. It is usually the mother or the primary caregiver who is targeted, but other children in the family and fathers suffer too.

What Causes Teens to Abuse Their Parents?

It is difficult for parents to recognize they are being abused, or admit they are being abused.  Most blame themselves and are therefore reluctant to seek help.  Yet many people (most?) consider parent abuse to be the result of bad parenting, neglect, or the child suffering abuse themselves. However, many teen abusers have had a normal upbringing and have not suffered from these issues.  Other factors contribute to children abusing their parents, such as undiagnosed mental illness.  Additionally, if the child sees domestic abuse happen in the household, they will be more likely to continue such behaviors.  Parent victims of domestic violence are often re-victimized by their own children.

Psychological Effects of Parent Abuse

girl hittingParents who are exposed to abuse from their child are affected in many ways, with many psychological issues as a result of the abuse. They can lose their ability to control the household and protect everyone else—all family members are victimized just like in any situation with domestic violence between adults.  They develop PTSD, depression, and suffer from lack of sleep and constant fear anxiety.

Giving into the child’s demands and abusive tactics can,
paradoxically, be easier to handle than the severe backlash
they’ll face by standing up for themselves.

10 Steps for Dealing With an Abusive Child

Do not allow yourself to suffer in silence; confront this problem for everyone’s sake, including your abusive teen.  You have little choice but to take back control!  Do not give your power away any more; you really can put a stop to abuse.

  1. If you are suffering from parent abuse, you must recognize that you are not at fault and do not deserve this, as with any form of abuse. Speak to a friend, or contact a domestic violence support group. Seek professional help.
  2. Calmly confront the child about their behavior and tell them you will not tolerate it anymore. Explain that what they are doing is abuse (and brace yourself ahead of time because their backlash could be fierce). You will have to communicate this many times so that they will eventually hear you.  It doesn’t mean they’ll have any intention of stopping, but it prepares them to expect what you’re about to do next.
  3. Remove all privileges, rights to cell phones, computers, video games, money, etc. and refuse to be a taxi service. Set boundaries and punishments and enforce them.  Be careful, if the child makes homicidal threats don’t hesitate to call the police and get them to an emergency room for a psychiatric evaluation!  Remember the definition of a mental health emergency: the person is “a danger to themselves or others.”
  4. If your teen runs, report them to the police immediately, and report anyone who is harboring your runaway. (Anyone who protects runaways from parents is guilty of the crime of custodial interference.)  Sometimes police intervention is enough of a wake-up call for your teenager and reduces the severity of abuse or leads to stopping it.
  5. abusive son in courtIf you feel that you can still communicate with your child, seek mediation with a counselor or other professional, and explain that you will not tolerate this behavior in the session. You want someone else to hear this.  Lay down some ground rules.  Take a hard stance and tell your child that if you are hit again, you will call the police and have them arrested. Don’t call their bluff, do it. They need to see that you mean business. If your child physically harms you, steals from you, or damages property, involve the police immediately and PRESS CHARGES!  Sometimes getting law enforcement and the juvenile justice system involved is the only way to get professional help for abusive teenagers.
  6. Try not to retaliate by hitting back unless in absolute self-defense, and disarm them if they come at you with a weapon. Abusive teens have called the police themselves, or other sympathetic adults, to report you have hit or abused them, and the law will come down on their side first. You can be prosecuted for hitting your child, and your child can be removed from your care as can any other children in your household. Don’t be reluctant and call the police immediately (!), get it on record.
  7. Get help and support from other parents who understand and will support you without judgment.
    a—In the UK contact Parentline Plus, an organization dedicated to helping parents. They can be reached at 0808 800 2222. Visit their website and look on the message boards for help and support groups in your area. They often run groups which offer practical support and tips for parenting difficult teens.
    b—In the US you can call the National Domestic Abuse Hotline at 1-800-799-SAFE (7233).  Also look for a StandUp Parenting support group in your area.  Their website is standupparenting.org/.
  8. Approach your child’s school and have your child referred to children’s mental health services, or refer them yourself, informing them that you are suffering parent abuse.
  9. Keep a journal of events, with dates, times, etc., or a video diary, and film your child when they are abusing you (you can use your mobile phone or digital camera). Often, when faced with media of their own behavior, it can shock them into accepting help from professionals.  (I’ve personally seen videos work very, very well –Margaret)
  10. You cannot do this alone!  Involve others who will help you.  Seek help from extended family and friends to see if they can offer to give you respite by taking the child from you for a few days.  Get therapy for yourself and your family.  You are all paralyzed by suffering–it’s serious and can affect all of you for years.

If you’re a victim of abuse by your child, take Ms. Bradley’s advice and take action.  –Margaret

Resolving Parent Abuse

furious boyHopefully, you found some strategies in this article to help you deal with abuse from your children. There is a light at the end of the tunnel, and there are solutions that can stop the violence from continuing. Stay strong and be vigilant and plan ahead for self-protection. If you love your child, love yourself. They need you to be OK.

Be strong.  Be courageous.  You can do this.

Note from blog owner:  I made edits for length or clarification, and added additional information.  This is a link to the original published article by Alicia Bradley LCPC.
—Margaret


Do you have a story of abuse?  Do you have questions or need support from others?  Add your comments.  Other parents out there know what it’s like, and they care.

Unsettling: What psychosis looks like in children and young people

Unsettling: What psychosis looks like in children and young people

kill him street
This eerie painting is by a young woman of 22 diagnosed with schizophrenia. She is encountering a threat, real or imagined, and her paranoia is compounded by being watched from the window above. Note the symbolic references to communications links and satellites.

Odd, eccentric, a little weird:  people experiencing psychosis are living in dream space.  If you haven’t experienced psychosis yourself, it’s a little like the period just before you awake, when you’re in a dream but also aware of your surroundings.  Your dream and emerging consciousness weave together in a wonderful or horrible or simply odd narrative.  If you try to explain it someone, you realize it makes no sense, yet it made a lot of sense while you were dreaming.

To a parent watching a psychotic child, you may observe that they see, feel, hear, move about, and respond to you as if fully conscious, but it’s important to know that they simultaneously inhabit the subconscious. As a result, they don’t notice that what they do and think is any different from anyone else.  The term “anosognosia” refers to their inability to recognize this, and it explains why so many resent being told they have a problem and need treatment.  They simply aren’t aware that anything is different about them.

Evidence of psychotic behavior

Parents of a child who was eventually diagnosed with a psychotic disorder often report that their child was always a bit different from their peers–slightly eccentric, a unique individual who had an interesting way of looking at the world. Parents have also reported the following behaviors when their child was exhibiting psychosis.  (Not all of these are present in each child.)

  • A belief in something that isn’t rational, and the belief is unusual or unreal or impossible.  The person cannot be talked out of the belief.  And rational, logical reason only increases resistance to reason.
    • If the psychotic episode is positive or magical, the person may have powerful religious feelings and a sense of omnipotence or clairvoyance. They may believe they have been instructed to give a message to save the world, for example.
    • If the episode is negative and paranoid, they can become very agitated, fearful, or they may panic.  They may act negatively on irrational beliefs.  They are attracted to paranoid or extremist views, especially those with high emotional content.
  • Smiling or laughing at nothing in particular and for no apparent reason. It’s as if someone has just told them a joke.
  • Yelling or ranting, this could be at an object or at someone or at nothing apparent. The ranting can happen online.  The ranting has repeated themes, and the themes are unique to each person.
  • Intense, crushing anxiety, irritability, accusations, and obsessive troubling thoughts.
  • Talking and gesturing as if they’re in a conversation with an invisible someone. (Normal people also gesture they think, but they are aware they are not literally communicating with someone.)
  • Wandering eyes and shifting body language as if they are seeing or feeling things that aren’t there.
  • Abrupt personality change from seemingly normal behavior.  Often, a child’s eyes will have a disquieting faraway ‘look’, as if the child is not in their body, and a they’ve been overtaken by a demon.
  • Fear, anxiety, and paranoia–they feel watched, trapped, and controlled in some way. They stop trusting people.  They hide or try to block experiences to protect themselves.
  • Intense obsessions with ideas, things, or events (even if they occurred long past). Themes emerge which often refer to actual events that elicited strong emotions.
  • Seeing patterns and connections in events that aren’t connected.
  • Unusual and confusing responses when communicating with others—a comment that doesn’t seem to apply, or a a string of words that defy interpretation.
  • A preference for solitude and closing themselves off from others.  This is for self-protection.
  • Loss of interest in self-care: not wearing clean clothes, bathing, or organizing their surroundings.

The most common diagnoses that have psychotic features are schizophrenia, schizoaffective disorder, bipolar disorder, and depression.  This story about schizoaffective disorder gives some real world examples of psychosis:  “Life with a Schizoaffective Teen.”

Psychotic behavior can have a long slow onset

brain degeneration in schizophrenia
The image on the left is of a 15-year-old boy with early onset schizophrenia. The purple regions have normal neuron density, red regions have low neuron density. In the 2nd image, the red area at the top of the brain is in the cerebral cortex, the region of executive function and rational thought.

It’s easy to miss signs of early psychosis!  Sometimes a child or young person starts showing eccentric behaviors that aren’t serious or are easy to interpret as something else: creativity and imagination; immaturity; puberty; influences from immature friends; too much video gaming…  Your child may have been experiencing mild visual or aural hallucinations for some time, even a couple of years, and just assumed it happened to everyone so they never reported it.  As psychosis emerges in the early teens, their thoughts and behaviors start affecting friendships or school work.  The child stops doing things they once enjoyed.  Someone might assume they’re experimenting with drugs.  They seem so much like other difficult, distracted, or defiant teens that a parent can be lulled into thinking they are not seriously mentally ill… but psychosis is very serious.

If this describes your child, immediately (and I mean immediately) find a psychiatrist and get an assessment.  The earlier you can treat psychosis, the better the outcome for your child.  Psychosis is degenerative.  The longer a brain stays in a state of psychosis, the more neurons it loses.  Early treatment via therapies, medication, diet, and other physical supports can literally prevent neuron loss and future psychotic breaks that require hospitalization.

Psychosis can emerge abruptly

For disorders on the schizophrenic spectrum, this is common in young men in the late teens and early 20’s.  However, adults in their 30’s and 40’s have also been known to have sudden onset of psychosis.  It’s tragic, you witness this young person launching into adulthood, studying in college or starting employment, and suddenly his or her personality changes.  Their behavior worsens, and it becomes evident they’ll never be able to have the future they planned.  They need immediate treatment, possibly hospitalization if the psychotic break reaches a crisis point.  If this is your child and they are past age 18, use every means possible to get help for them!

Kendall art
Self-portrait by a 24-year-old woman diagnosed with schizoaffective disorder. Her image is a modified mug shot photo taken of her after an arrest.

What worsens psychosis and what you can do to relieve it

  • Poor sleep and reduced sleep.

Help your child get enough hours of sound sleep. The best sleep environment is a cool very dark room.  Once my child became unable to attend high school, I allowed her to nap any time of the day.

  • Closing themselves off from the world.

Your child needs mental and sensory stimulation to keep their mind from spinning out on their obsessions, hallucinations, and paranoia, but the amount must be tolerable.   Stimulus must come from the tangible, sensory world (e.g. not screen time, videos, books).  Concrete interaction with reality diverts their attention from obsessive thoughts or voices.  They will benefit from regular (perhaps limited) social interaction*, an undemanding therapy animal, creative work (such as art and music), and being out in nature.

  • Marijuana use–specifically the THC in marijuana

CBD in marijuana has many medical benefits and is considered safe, but the THC is not.  THC is also addictive, and available in very highly concentrated oils… extremely dangerous.  Like THC, any addictive substance, from alcohol to methamphetamine, will interfere with treatment for psychosis.  The drug’s influence trumps everything.  Drugs are literally self-induced psychosis.  See:  “Marijuana is Uniquely Harmful to Troubled Teens”;  “Marijuana is Dangerous.”

  • Continual exposure to things they already obsess on or that make them paranoid, angry, or anxious.

In every way possible, keep your child away from any material, people, or messages that upsets them.  These only add gasoline to the fire and increase the likelihood of future psychotic breaks.  They may obsess on the same things for the rest of their lives.  If someone who’s psychotic is exposed to intense emotional experiences that feed their obsessions and paranoia, people have been known to do to horrible things to themselves or others.  An example at the time of this writing is of a young woman with psychotic bipolar mania who tragically pulled out her own eyes.

Find ways to redirect your child’s attention elsewhere and help them get a grasp on the reality.  Help them calm down (“deescalate” them) and help them learn ways to calm themselves down.

A diagnosis of an illness that includes psychosis is devastating

Face to facePsychosis and/or a psychotic crisis in a child who previously led a normal healthy life blindsides everyone, especially the family.  Allow yourself to go through the stages of grief as you would after any death…  because it can feel like the ‘death’ of your child and their future and your hopes for them.  Get help from others as you would after any death.  Here you are, grieving, but your child needs you to be strong!  Get help for your own mental health.

Reason for hope

Children who receive regular social support from family and loved ones do well over the decades.  They can avoid homelessness, hospitalizations, harm.  They can get advanced education, keep strong relationships, maintain employment.  They get a life of wellbeing.  This has happened with my adult child after years of horrendous experiences.

Cognitive Enhancement Therapy

A relatively new therapy has been developed and tested that meaningfully helps people with chronic psychotic disorders.  “CET attempts to increase mental stamina, active information processing, and the spontaneous negotiation of unrehearsed social challenges. It does so with a focus on enhancing perspective taking, social context appraisal, and other components of social cognition… CET has been shown to have remarkable and enduring effects in a study of persons with schizophrenia or schizoaffective disorder…”
–CET Training LLC, “approved and recognized by the U.S. Substance Abuse and Mental Health Services Administration (SAMHSA) as an evidence-based practice.

What are your experiences?  Have you found anything that helps?

–Margaret

 

*Social Interaction Increases Survival by 50%
Psychiatric Times. July 30, 2010

Theoretical models have suggested that social relationships influence health through stress reduction and by more direct protective effects that promote healthy behavior. A recent study confirms this concept.  Findings from a meta-analysis published in PLoS Medicine indicate that social interaction is a key to living longer. Julianne Holt-Lunstadt, PhD of Brigham Young University and colleagues analyzed data from 148 published studies (1979 through 2006) that comprised more than 300,000 individuals who had been followed for an average of 7.5 years. Not all the interactions in the reports were positive, yet the researchers found that the benefits of social contact are comparable to quitting smoking, and exceed those of losing weight or increasing physical activity.

Results of studies that showed increased rates of mortality in infants in custodial care who lacked human contact were the impetus for changes in social and medical practice and policy. Once the changes were in place, there was a significant decrease in mortality rates. Holt-Lundstadt and colleagues conclude that similar benefits would be seen in the health outcomes of adults: Social relationship-based interventions represent a major opportunity to enhance not only the quality of life but also of survival.”


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Welcome to the 911 Club for Parents of Troubled Kids

Welcome to the 911 Club for Parents of Troubled Kids

Let’s start a 911 Club, a community for parents who depend on emergency services for managing their mentally ill child. Our T-shirts would be black and blue like bruises. Only people raising a mentally ill child or young adult could join. Club rules would be simple:  1. No one is ever judged. 2. We keep things confidential. 3. Everyone is made to feel like a hero. 4. Everyone accepts that they are not guilty or failures, and neither are their children.

Every day, an emergency is just around the corner.

Parents with troubled children, no matter the age or diagnosis, are forced to make difficult decisions and take extreme actions… like calling 911.  It’s not something they choose, and they’ll avoid it if possible.  They are like any other parent with a severely disabled or physically ill child—they will do anything to help their child, but instead of wheelchairs or chemotherapy, they need emergency responders.

Most parents with normal children will never need to do the following 10 things that parents of troubled children often do:

  1. Call police
  2. Call an ambulance
  3. Or call a crisis line repeatedly
  4. Search a child’s room, especially if the child is a teenager or may be suicidal
  5. Spy on their child: read their email, texts, social media or search histories, read their journals
  6. File criminal charges or get a restraining order
  7. Lock up common household items (matches, knives, scissors, fuel, and anything conceivably dangerous in the wrong hands)
  8. Participate in endless meetings, appointments, and therapy sessions. Complete dozens of forms and continually pursue financial or community mental health resources
  9. Block out people who used to be friends
  10. Never share our stories with ‘normal’ people lest we get bombarded with uninformed and unsolicited opinions.


Parents can see an emergency coming, but can do little to prevent it.

All parents of troubled children have barriers to getting help, even when it’s blatantly obvious that the child needs it.  Why?  The aftermath of a recent high school shooting in Florida by provides details:

  1. The tragedy has to happen first: “A neighbor warned the sheriff’s office …and begged them to intervene. She was told there was nothing deputies could do until Cruz actually did something.”
  2. Mental health professionals don’t take history into account; and they are ignorant that children can behave well in their presence: “An investigator … spoke to Cruz, and advised that he was “not currently a threat to himself or others” and did not need to be committed.
  3. Family and other eyewitnesses are ignored by the people and institutions they depend on. “Lynda Cruz’s cousin warned deputies Cruz had rifles and pleaded for them to “recover these weapons.”


Policymakers, mental health professionals, and emergency responders out there:  fix this!

Part of the reason parents or family of the mentally ill person can’t get timely help is because of civil rights laws.  To those in the mental health community, start talking about how to handle this.  The present situation is unacceptable!  Stop protecting an acknowledged dangerous person’s rights over those of innocent victims.  It’s not OK.  This is just like some gun advocates who think it’s more important to sell assault rifles to protect their personal rights over those of innocent victims.

True Story

An upsetting thing happened in my city about 10 years ago that could have been my story. A man took his grown son to the emergency room because the son had been insisting he was going to stab someone—he suffered from untreated schizophrenia. When there, the staff found no reason to hold the son despite his history of violence and his father’s testimony. The father pleaded with them to put his son in a 72-hour hold and they refused.

Within minutes, the son ran off into the surrounding neighborhood, and within an hour, had stolen a steak knife from a restaurant, and ran out and stabbed a man walking on the sidewalk. (The victim lived, fortunately.) The father told the reporter that he’d been trying every possible means to stop this from happening in the hours before the event. Getting the son to go with him to the ER was an extraordinary feat in and of itself. He was beside himself with frustration and sadness and anger.  Now his son had aggravated assault and attempted homicide charges, and faced prison instead of a hospital.

–Margaret

 

U.K. needs to be a “999 Club”; Germany needs a “112” Club; a “110 Club” in China…