Category: oppositional defiant disorder

Stigma is prejudice, and harmful to children

Stigma is prejudice, and harmful to children

Stigma victimizes the victims

“Misconceptions based on perception rather than fact have been shown to be devastating to children’s emotional and social well-being.”
–Dr. Bernice Pescosolido

Stigma, blame, judgment… It only takes a few individuals to harm a child or family with their words, but it takes a whole society to allow it.  In this article, I’m going to present recent research on the negative stereotyping of families and children with mental disorders, and share stories from families I know.  I hope readers will be empowered to speak out against this form of prejudice and mobilized into changing our society’s attitudes.

Puckette(c)2007

Stigma takes many forms.

The most common scenario of stigma is when you are seen as a bad parent, perhaps even an abusive one, or your child is seen as stupid, spoiled, attention-getting, or manipulative.  Another form of stigma is having others show disrespect to parents who seek help from the mental health profession.  Psychologists are “flakes,” and families  who see them are “wackos.”  “Where’s your faith?”, some say, or “why don’t you quit making excuses for your child and give them real consequences?”

One of the more destructive forms of stigma is the condemnation parents receive when they “drug their child to fix them.”  Too many believe drugs turn children into “zombies” (see research study below).  Because of the stigma of treatment, I’ve seen many parents try every alternative treatment possible to help their child, only to have their child struggle year after year in school, fall farther behind their peers, make no progress in therapy, and other setbacks that medicines can prevent.  These parents cling to the belief that they are doing the right thing, yet some children really need medicines, and the drugs don’t turn them into zombies.  [In today’s treatment approaches, drugs are always considered a piece of the treatment puzzle, never the complete answer.]

 

A mother’s story about her experience with stigmatization:

This mother lost her best friend of 20 years because the friend got tired of hearing the mom talk about her very troubled 10-year-old son.  In frustration, the friend wrote her a letter saying the mom was neurotic, and that she should quit trying to control her son, that her son’s behavior was a cry for help.  The friend said she needed to set her son free and get help for her emotional problems, and that she wasn’t going to “enable” this mom anymore by being her friend.  The mom was stunned and hurt by the letter.  She intellectualized that she didn’t need a friend like this, but her heart was nonetheless broken by the betrayal.  The son turned out to have brain damage from a genetic disorder and it was getting worse.

It’s hard enough to be reminded over and over again how our children don’t fit in, and how we may never  have the same joys as parents of mentally healthy children.


Ideas for what you can do when you’re blamed and judged.

First, resist defending yourself; it can attract more unwanted attention and disagreement.  You don’t have the time or emotional energy to explain or teach someone who will challenge everything you say.  Do everything you can to avoid people like this—many have had to cut off some family members and friends, and even their clergy or religious communities.

My story:  when my child was diagnosed with a serious mental disorder, I stood up in front of my church congregation, explained what was happening, and asked for prayers for my family.  At the end of that service, people started avoiding me.  There were no more hello’s.  There wasn’t even eye contact.  The abrupt isolation from people I knew was devastating and I stopped attending.  What did I say?  Why did this happen?  I thought if my child had a ‘socially acceptable’ cancer others would know what to do or say to ease the isolation and grief.

Second, actively seek supportive people who just listen.  You need as large as possible a network of compassionate people around you.  You may be surprised how many people have a loved one with a mental or emotional disorder, and how many are willing to help because they completely understand what you’re going through.

Third, politely and assertively say thanks but no thanks.  Try something like this:  “Thanks for showing interest, but we are getting the help we need from doctors we trust.” Or simply, “please don’t offer me advice I didn’t ask for.”  No apologies.

It’s hard enough to be reminded over and over again how our children don’t fit in, and how we may never get have the same joys as parents of mentally healthy children.

–Margaret


Public Perceptions Harsh of Kids, Mental Health (excerpt)

May 1, 2007   (USA TODAY)

Though the subject has been analyzed in adults, until now there has been limited research illuminating how the public perceives children with mental disorders such as depression and attention deficit disorders, according to experts from Indiana University, the University of Virginia and Columbia University.  The findings are published in the May 2007 issue of Psychiatric Services.

The study, based on in-person interviews with more than 1,300 adults, indicates that people are highly skeptical about the use of psychiatric medications in children.  Results also show that Americans believe children with depression are more prone to violence and that if a child receives help for a mental disorder, rejection at school is likely.

“The results show that people believe children will be affected negatively if they receive treatment for mental health problems,” says study author Bernice Pescosolido, director of the Indiana Consortium for Mental Health Services Research, in Bloomington.  “Nothing could be further from the truth.  These misconceptions are a serious impediment to the welfare of these children.

According to the study:

  • Those interviewed believed that doctors over-medicate children with depression and ADHD and that drugs have long-term harm on a child’s development.  More than half believed that psychiatric medications “turn kids into zombies.”
  • Respondents thought children with depression would be dangerous to others; 31% believed children with ADHD would pose a danger.
  • Respondents said rejection at school is likely if a child goes for treatment, and 43% believe that the stigma associated with seeking treatment would follow them into adulthood.

Pescosolido and her colleagues say such stigma surrounding mental illness — misconceptions based on perception rather than fact — have been shown to be devastating to children’s emotional and social well-being.

Population studies show that, at any point in time, 10% to 15% of children and adolescents have some symptoms of depression.  About 4 million children, or 6.5%, have been diagnosed with ADHD, only 2% less than the number of children with asthma.

“People really need to understand that these are not rare conditions,” says Patricia Quinn, a developmental pediatrician in Washington, D.C.

To banish the stigma linked to mental health problems in children, the public has to get past labels and misconceptions, Pescosolido says.   Normalizing these conditions would help too, Quinn says.  “We need to view depression and ADHD like we do allergies,” she says. “They are very treatable.”

Things that protect troubled girls from delinquency

Things that protect troubled girls from delinquency

 

Both boys and girls get in trouble with the law.  Boys are in the majority for arrests for crime, but statistics indicate that girls’ arrests are increasing:  “…between 1996 and 2005, girls’ arrest for simple assault increased 24%.”  Of 1528 girls studied over a period from 1992 and 2008, 22% committed serious property offenses and 17 % committed serious assaults.  (Girls Study Group, U.S. Department of Justice, 2008. www.ojp.usdoj.gov).

  

Troubled girls easily become criminal, but also risk being a victim

 

Girls who have behavioral disorders, from addictions or past trauma or emotional disorders, begin to have delinquent or criminal behaviors as early as middle school.  What makes a girl’s criminal activities different from boys is that girls put themselves at high risk of being victimized themselves.  How can a parent or caregiver prevent their daughter from engaging in criminal behavior, and trapping themselves in a social world where their stresses and disorders can worsen?

 

The Girls Study Group quoted above studied which factors protected girls from becoming criminal, or helped them stop and reengage in activities that improve and stabilize their lives.  Protective factors did not prevent all criminal activity however, yet the first one has been shown to be the most effective.

 

  • Support from a caring adult.  THIS IS THE SINGLE MOST IMPORTANT FACTOR in preventing girls from criminal activities of any kind.
  • Success in school helped prevent aggression against people, but not property crimes.
  • “Religiousity,” or how important religion was to troubled girls, meant they were less likely to be involved with drugs.

Risks to girls that are different from boys: 

    

Early puberty is a risk if the girl has a difficult family and comes from a disadvantaged neighborhood.  Biological maturity before social maturity causes more conflicts with parents and more negative associations with older boys or men.

 

Sexual abuse, which girls experience much more than boys, including sexual assault, rape, and harassment.  But abuse of any kind affects both boys and girls equally.

 

Depression and anxiety, which girls tend to suffer more from than boys.

 

Romantic partners.  Girls who commit less serious crimes are influenced by their boyfriends.  But for serious offenses, both boys and girls are equally influenced by a romantic partner.

 

Once she’s regularly breaking rules, it’s not easy to turn things around for a troubled girl.  It requires constant, persistent efforts to:

  • Keep her away from risky associates.
  • Keep her in school and up with studies. 
  • Keep telling her what’s great about her, what’s special, what’s powerful and good.

If you are a parent or caregiver, and you are lucky enough to have a strong mentoring relationship with your troubled daughter, keep it up despite any occasional law-breaking activities.  She’ll need consequences, but they should be obstacles to overcome rather than punishments—such as earning back privileges by having good behavior for a period of weeks or months.

 

If you don’t or can’t have a mentoring relationship, find out who can (or already does).  Admit you might not be the sole support for her success, and work in partnership with a caring adult.  Find out who believes in her already.  Find out who she asks for help if she’s feeling fearful or down about herself.  Listen to her if she talks about someone she’s grateful for for helping her through difficulties.  Girls respond really well to someone who believes in them.

 


Teen girls can be turned around and it’s always worth the effort.  She might be hard to take sometimes, but find something, anything, that’s good about her and let her know.  Over time, you’ll start noticing more and more great things about her, and then she’ll start noticing them too.

Gang Up on Your Kids: Network with Other Parents to Track Troubled Kids

Gang Up on Your Kids: Network with Other Parents to Track Troubled Kids

An article in the local paper told the story of a mother who desperately tried to get help for her at-risk son to keep him out of a gang.  Yet he became a victim of a drive-by shooting and was in intensive care for days, but he lived.  In the article, she said something I’m very familiar with; she said other parents never told her what they suspected, nor did anyone let her know if her son was at their house when he ran away.  Just knowing her son’s whereabouts could have helped her intercept dangerous activities.  Like her, I never got information from other parents who might have been (or should have been) concerned about my troubled child.  Why didn’t other parents stay in touch and help each other control their children?

 

At-risk kids hang out together, they know each other’s stories (true or not), and protect each other, and parents are out of the loop.  What if parents got together too, shared stories, and supported each other’s goal of protecting their child from making mistakes?  Kids’ unsafe plans and activities are no match for the many eyes and ears (and cleverness and wisdom) of all their parents combined.

 

How to track at-risk kids and join forces with other parents:

 

Go on the internet, check out Facebook and other social media, and look for your child’s page and the pages of his or her friends.  The police do this all the time; it’s one of their main investigative tools!  At-risk children share everything over the internet:  photos, favorite places and people, favorite activities (even illegal ones), and other incriminating information. It’s easy to identify kids who are at-risk.

 

Contact the parents or caregivers of your child’s friends, by phone or email anytime you find out that their child or teen was with your own child while doing unsafe activities.

 

I did this.  Some parents were thrilled to find support, but a couple were angry with me at first.  After all, I was delivering bad news.  They defended their child, or accused my child of telling stories.  I just said, “I thought you’d want to know.  My kid is in trouble, but you may want to know your child was also involved.”  It took some backbone to stay online, but they eventually calmed down and expressed disappointment in their child.  They often hadn’t suspected anything.  Then I asked if we could join-up and inform on each other’s kids to keep them safe.  Always, I received a strong yes.

 

Compare notes and share news about friends, friends of friends, which houses were dangerous (e.g. adult not at home, or adult provides drugs or alcohol), which places they hang out, and who might victimize them or be victimized by them.

 

Call a teacher and ask who your child hangs out with at school, or if they know another parent who is worried about their kid, call that parent and make a pact to keep each other informed.  Whether they help you or not, at least they know someone’s watching and paying attention.

 

True story – One mother I know recruited a “spy network” with her son’s friends’ parents and with employees of businesses he regularly frequented, such as a skateboard shop near his school and a coffee house.  She was able to keep track of where he was if he ignored her curfews, and inform the community police of adult associates (usually 18-24) who were known to provide drugs, alcohol, and cigarettes to youth.  Her information helped empower other parents who hadn’t known what to do, but were then able to restrict their teen’s activities away from home and make it uncomfortable for unsafe people to associate with them.

 

True story – A father I met took the “spy network” idea a step further and had contact cards, like business cards, which he gave away to police, teachers, other parents, and anyone he met who knew his daughter.  The contact cards basically said “Please help us keep Kari safe and call us, her parents, anytime she is at the following places [ … ] or doing something you believe is inappropriate.  Thank you very much for your help.  We will keep your calls confidential from our daughter.”  Then the card gave the parents’ names, number, and email address.  This greatly limited their daughter’s contact with unsafe or inappropriate friends and adults, because they knew they might be watched and reported if she was around.  Surprisingly, this attention improved the girl’s progress in family therapy, as she stated she felt more like her parents cared.

 

Word gets out quickly among the groups of at-risk kids and the adults who enable them.  If you let enough people know that they may be watched when at-risk kids are around, then they will avoid these kids and even ask them to leave their company.  Don’t forget:  you are smarter and more experienced than young people.  You, as a parent, are not alone with your concerns about your child.


Reach out to the other parents in your community.  You will be surprised how many will thank you.

–Margaret

The Troubled Teen Industry – A warning about boarding schools and outdoor camps

The Troubled Teen Industry – A warning about boarding schools and outdoor camps

This is a troubled teen in a military-style camp, not an adult military recruit who’s there by choice.

There is a troubled teen industry out there—boarding schools, outdoor programs, and “boot camps” that are not licensed, not certified, and not experienced with youth with disorders.  Maybe you’ve seen the ads that promise to improve your teen’s behavior in the back of some magazines.  They promise that their program will “fix” your child.  They promise that your teen will learn important lessons about respect and about following your rules.  There are quotes from satisfied parents about how the program saved their teen’s life, but you can’t contact them.  The ads claim that staff are highly trained, strict, and caring.  The location is usually too far to check out easily, an airline flight away from home, often in a rural area.  The cost is outlandish.  To help with payment, the program provides financial advice to parents about getting loans and 2nd mortgages.

It’s a red flag if they –>promise<– to ‘correct’ your child.

You’re a desperate parent and you’ll do anything you can to stop the craziness and get a break.  You tell yourself it must be a nice place, especially if it advertises a religious approach*, even though you haven’t seen it in person.  The representative on the phone seems to know exactly how you feel and what your teen needs.  If you’re desperate, you may not think to ask if the organization is a legitimate behavioral health treatment facility.  Many are not!

*Claiming a religious affiliation is no guarantee of a genuine, effective faith-based program.

 What to ask:

 

What is the training and licensure of staff?  You want to know if they have therapists with MSW degrees, registered nurses, psychiatrists or doctors, and if a professional is available on site 24/7.  Mental health programs are about treatment and stability through medication or therapy, and positive activities with lots of emotional support.  Safety must be paramount.  Staff must be aware of the types of things that can go wrong and how crises should be handled.

 

Does the camp or school have a business license in their state?  Are staff licensed to practice behavioral health?  Do they have grievance procedures?

 

Is the camp or school accredited as a treatment facility, and by whom?  Does it have mental health agency oversight?  Are emergency services (hospital, law enforcement) a phone call away?  If your child’s mental health is a concern, read “What to know about psychiatric residential treatment.”

 

punish boy in boarding school
It’s understandable if you’ve “had enough!” and want your child punished, but excessive punishment does not work.  (Quote of camp counselor, “If I can’t make a kid puke or piss in his pants on his first day, I’m not doing my job.”)

Can you call and talk to your child when you request?  Can you visit?  Can your child call you when they request it?  Some of these programs limit or disallow parental contact. Why? According to a testimonial at a children’s mental health conference, a young man was used as slave labor at a camp. The staff kept communicating to his mother that he was misbehaving, that he hated her and didn’t want to talk, and that they recommended he stay another 6 months.  In this way, they drew out his stay for 3 years.

I’ve heard personal testimony from parents and troubled young people whose condition was worsened by the camp or school, or who felt betrayed by their families.  On rare occasions, children have died at the hands of young, untrained staff who thought they were just disciplining the child.  Other stories included teens being offered drugs by staff or other campers, or sexual relationships with staff or campers.

 

Check out the article below.  The problems in the “troubled teen industry” are significant enough such that an advocacy group has formed to change state laws to protect youth.


 

Unlicensed residential programs: The next challenge in protecting youth. –excerpt-

By Friedman, Robert M.; Pinto, Allison; Behar, Lenore; Bush, Nicki; Chirolla, Amberly; Epstein, Monica; Green, Amy; Hawkins, Pamela; Huff, Barbara; Huffine, Charles; Mohr, Wanda; Seltzer, Tammy; Vaughn, Christine; Whitehead, Kathryn; Young, Christina Kloker

American Journal of Orthopsychiatry. Vol 76(3), Jul 2006, 295-303.

 

According to this article, many private residential facilities are neither licensed as mental health programs nor accredited by respected national accrediting organizations.  The Alliance for the Safe, Therapeutic and Appropriate use of Residential Treatment (A START) is a multi-disciplinary group of mental health professionals and advocates that formed in response to rising concerns about reports from youth, families, and journalists describing mistreatment in the unregulated programs.  There is a range of mistreatment and abuse experienced by youth and families, including harsh discipline, inappropriate seclusion and restraint, substandard psychotherapeutic interventions, medical and nutritional neglect, rights violations and death.

How to work with police once you’ve called 911.

How to work with police once you’ve called 911.

 

Q: Should I call 911?  I’ve been told I should call the police or mental health hotline when there’s a crisis, but how do I know when it’s a real crisis?


A:  If your child is doing something dangerous to him or herself, or others (including a pet), or property, and if you can’t manage it or stop it, call.  “Dangerous” means threatening, harmful, or abusive.  Emergency 911 dispatchers, police, and mental health crisis workers all encourage anyone to call, anytime.  You will not bother them.  I once visited a 911 facility and got a chance to ask to speak with the staff and this was their message.  They described the many ways they can respond when a child or teen “blows out,” runs, or becomes suicidal.

 


Once you call the police:

Advice from the Federation of Families for Children’s Mental Health (www.ffcmh.org).

  

1.   Remain as calm as you possibly can.

 

2.   Provide only facts as quickly and clearly as possible.

EXAMPLE:  I am calling from [address].  My 13-year-old son is threatening to cut his sister.  He has [diagnosis] and may be off his medication and under the influence of alcohol.  There are 4 of us in the house: my mother, my son and daughter, and myself.

 

3.   Identify weapons in the vicinity or in your child’s possession and alert the dispatcher

 

4.   Be specific about what type of police assistance you are asking for.

EXAMPLE:  We want to protect ourselves and get my son to the emergency room for a psychiatric evaluation, but cannot do that by ourselves.  Please send help.

 

5.   Answer any questions the dispatcher asks.  Do not take offense when you are asked to repeat information.  This is done to double-check details and better assist you.

 

6.   Offer information to the dispatcher about how an officer can help your child calm down.

 

7.   Tell the dispatcher any addition information you can about what might cause you child’s behavior to become more dangerous—suggest actions the officer should avoid.

EXAMPLE:  Please don’t tell him to stand still.  He cannot hold his body still until he calms.  If you can get him to walk with you, he can listen and respond better.  He is terrified of being handcuffed.  Please tell him what he needs to do to avoid being handcuffed.

 

REMEMBER:  Your primary role in this situation is to be a good communicator.  Your ability to remain calm and provide factual details is critical the outcome of this situation.” 

– – – – – – –

 

What is your local police force like?  Call the non-emergency line and check, ask questions about how police typically respond to situations where a child or teenager is diagnosed with a mental disorder and out of control.

 

In many parents’ experiences, including mine, the police were very helpful.  Others have had poor experiences.  Some said their child calmed down and appeared normal once the police arrived, and they felt the police assumed they were exaggerating.  Some said the police only aggravated the crisis, and in a very few cases, the encounter lead to tragedy.

In 2007, I attended the national conference of the Federation of Families in Washington DC, and learned from the President of the National Association of Chiefs of Police, Ronald C. Ruecker, that the NACP has made a commitment to promote police training in crisis response to children with mental disorders, including information about the disorders and their manifestations.

When is it OK to search a teen’s room?

When is it OK to search a teen’s room?

“My son is always in his room and gets extremely upset if I go in there. He says he has a right to privacy, but I suspect something bad is going on, and want to search his room when he’s not there. Would I be violating his rights? It is OK to search his room?
–Mother of 15-year-old boy

I’ve gotten asked this question many times. The answer is “Yes” in the following circumstances:

  • Your child’s behavior has been changing recently, or they have become more secretive, irritable, or defiant than usual
  • He or she has left old friends for new ones whom you are concerned about, or has fewer and fewer friends
  • His or her grades have fallen recently even though they were formerly a good student
  • You sense that he or she is depressed or overly anxious or paranoid
  • Your child pressures you for money, or steals it from you, or finds ways to get money
  • You’ve tried talking with your child about general things in life, school, or feelings, and were met with anger or excuses or deflection.

If there is any concern that something that can be dangerous is being hidden from you:  search your child’s room.

When a young person gets very upset about invading their privacy, they likely are hiding something from you because they know you’ll disapprove. What could it be? Drug or alcohol use? An inappropriate relationship? Porn? Cutting or self harm? Severe depression? The onset of paranoid psychosis?

You have ample legal rights as a parent, but use them wisely and cautiously.*

If something is going wrong with your child and they need your help, you must do a balancing act: 1) get the facts; 2) maintain their trust and keep open lines of communication. Some of the dangerous activities above are common for ‘normal’ difficult teenagers, who can grow out of it or be rehabilitated with treatment and ample family support. Some of these are emergent mental illnesses that need treatment immediately. Why immediately? The sooner the child gets treatment at early onset, the less likely their disorder will develop into serious symptoms as an adult. Mental illnesses are degenerative to the brain, but you can stop it from going further if you start treatment early.

*”Your rights as the parent of a teen with a mental disorder.”

You can search through all their items for things that are or may lead to unsafe behavior. Things you might look for are razor blades, illicit drugs or drug paraphernalia, over-the-counter drugs or drugs that can’t be purchased under the age of 21 (e.g. Benadryl), pseudo-drugs like bags of incense powder, weapons (knives, guns), porn, sexual items, blood on clothes from cutting, etc. You can read your child’s email and texts to search for dangerous activities, plans, or people who may be negatively influencing your teen. You can remove any dangerous or inappropriate item and not return it–it is not stealing. No officer, no judge, no social worker would ever find you guilty. You would be praised instead.

“He was so mad at me when I found a bong in his room and took it.”

He said,”you’re stealing from me!”

“It’s my house and it’s not supposed to be here.”

“But it’s mine! I paid for it! It was really expensive! I’m reporting you for stealing!”

Also search other potential hiding places in your house or any other storage areas. If you find nothing unusual or dangerous on a search, great! You’ve at least satisfied your rightful need to know. Now, when you speak with your child about problems, you can set some fears aside and listen to him or her without bias.

Trust with a teenager is everything.

If your child finds out you’ve searched their room, yes, you will lose their trust, and he or she may go to greater lengths to keep secrets. So don’t tell them. And don’t bring up anything else you discovered if it’s not directly related to safety! What if you find stacks of incomplete homework? Forget it. Did you find food scraps in the bed? Forget it. A moldy sandwich in the closet? Don’t say anything that reveals you searched their room. As a responsible parent, safety and mental health trump lazy, messy behavior. Find other ways to address these.

In dire circumstances, a parent may need put some values aside.

What if you find something dangerous? Act on it immediately. Your child will feel violated and you’ll lose his or her trust, but it’s temporary. Do not defend your decision or try to rationalize it. It’s better to have uncovered a secret and opened the way for getting help. Now the tables have been turned on your child. Under serious circumstances, their trust of you is less important than your trust of them.

 

Good luck.

Is your child’s psychiatrist listening to you?

Is your child’s psychiatrist listening to you?

True story:

After a lengthy 2-hour session and a series of questions asked of both mother and teenaged son, the psychiatrist wrote:  “the mother is over exaggerating her son’s behavior.  He can’t possibly have all the symptoms she describes.”  Later, the mother said, “I was completely ignored; this doctor affirmed [my son’s] disrespect for me, in front of me, and [my son] got the idea I was full of it and didn’t need to take his meds.”  With the mother’s authority undermined, she lost an opportunity to get treatment for her son sooner.  He was eventually diagnosed with schizophrenia, and hospitalized several times.

 

What makes this situation tragic is that early medication, prior to the first psychotic break, prevents the loss of gray matter that occurs in schizophrenia.  This doctor’s unprofessional and judgmental behavior hurt the recovery prospects for this family.  This kind of dismissal of parents should never happen.  I’ve heard many complain that doctors, therapists, or teachers don’t listen to them, or that they subtly or overtly blame parents for their child’s problems.  Researchers found this to be widely true.  In an article titled “Uncharted Waters – The Experience of Parents of Young People with Mental Health Problems,” the author writes:

 

“Parents’ distress is exacerbated by their need for expertise, but from those who don’t take their concerns seriously.”

Harden, J, 2005. Qualitative Health Research, 15(2), 207-223.

 

I always appeared to be overly upset and stressed whenever I brought my child to see her psychiatrist because, leading up to any appointment, were a series of challenges and acts of resistance that were stressful and frustrating.  It appeared to the psychiatrist, time and time again, that I was the problem… just like she suspected.  All I could do was sit in the waiting room while my daughter was in session, and imagine my daughter saying terrible things about me and the doctor believing her.  All I could do was wonder if the psychiatrist could see through it all and know that I, the mom, was doing everything possible to help my daughter, that I was a good parent. Could the doctor see this and give me some hope?

 

Don’t accept being treated as anything less than a full partner.

 

Insist that the whole family get time with the psychiatrist, without the troubled child or teen, to check-in and see how everyone is doing.  Make the appointment and tell the doctor why.  Your family needs to say things they wouldn’t ordinarily say when the child is around.  They need to open up secrets and let out difficult feelings without the fear of setting off an explosion later.  The doctor needs a full picture of the child’s life at home, and use this as an opportunity to help the family work through challenges in ways that support everyone’s well being.

 

Insist on being told what to expect.  Another common experience is that parents are not told what to expect from treatment or why.  You need to know everything they know, even if the professionals are still unclear about a diagnosis or treatment approach.  Your child may have many physiological or psychological tests, expensive medications, or visits to many different kinds of ‘ologists’, and you may still not be clear on where the inquiry is going, why, and what the doctors or therapists are looking for.

 

Insist that they consider your daily experiences.  Since a psychiatrist observes your child only during an appointment, they aren’t fully aware of the types of situations that aggravate your child’s behavior.  You are the expert on your child and their behavior patterns; you are the expert on what drives them, and on what drives them crazy.  You know that, behind-the-scenes, much of what your child does is easily missed by a psychologist, psychiatrist, or therapist.  An experienced professional will listen to you and ask more questions.  You should expect them to seek clarity on your child instead of assuming they already know everything about them and your family.

 

Team up.  It takes both you and the psychiatrist working together, in partnership, to identify all the symptoms that lead to a working diagnosis.  You and the psychiatrist are a team that works together to do what’s best for your child.  And don’t forget, since you have all the responsibilities, your needs must always be considered when a doctor is developing a treatment plan.

 

–Margaret

What have your experiences been?  Your comments inform others who read this article.